I was rather lucky to spot the fact that Love on the Spectrum was airing on ABC TV (Australia) when it first actually appeared free to air. I was (sort of) reluctant to see it, as shows that dive deep into children and young adults with ASD exposes my sensitivities to the subject because of my autistic daughter, but Jenny and I decided to give it a go. I’m so glad we did.
Continue reading “Thoughts: Love on the Spectrum (ABC TV)”
Pleased to have my short story, 'The Deluge' accepted by new Queensland publishing house, Black Beacon Books, for their Black Beacons: Brisbane anthology. This is a pleasing sale, as it is local, and it is a tale that came to me vividly, inspired by the Brisbane floods a few years ago.
I'm not an obsessed bloggist – I post maybe 2 or 3 such posts a month, not counting my market news. I blog when the urge is overpowering. Happiness, anger, or some other intensive emotion. When I need to get it out. Today is such an occasion.
Being an autistic child's parent, I have a bit of a network with sites on autism and Asperger's Syndrome. A story caught my eye several days ago – a 9 year old non-verbal girl called Mykaela Lynch had gone missing. She and her family were holidaying in a northern Californian location where Mykaela was playing in the back yard under her younger brother's supervision. When she was hot she would strip naked, possibly wearing her child-nappy. The brother's supervision was interrupted by an incident with a bee and he rushed into the house to talk to his parents. It appears he left the gate open, and Mikaela – a 'runner' – slipped out of the yard, and her nappy was found in the street, not far away. A search began and several days later they found her body in a nearby watercourse. It appears that no suspicious circumstances surrounded her death.
This is unbelievably tragic, but it hits me especially hard because I have a girl nearly the same age as Mikaela, albeit she is high-functioning. They both have the same smile, the same gappy teeth, the same innocence. I can't help but empathize. I can't help but weep.
I noticed that some media commentators jumped quickly in, accusing the parents of negligence. This is harsh, working with fragmented information, and is overly-judgmental. As a parent of an autistic child, where vigilance is required constantly for years, if not decades, mistakes can happen. You don't want them to happen, but they do. Let's leave issues of negligence to the authorities, and instead provide sympathy for parents who no doubt loved their daughter as much as we love our own and are facing their worst nightmare. And that poor brother – I hope that those who are close to him make him understand that it wasn't his fault. At all.
I posted a few linked images to show a happy Mikaela. I hope this doesn't intrude too much on her family's need for privacy. I just want to convey my sincerest condolences.
I have my science fiction short story, Special, now available in Flying Island Press' Autism Benefit mixed genre anthology, Pieces of Eight: Autism Awareness. This is important to me, as my daughter has autism and I wanted to contribute to this worthwhile book. It is currently available in various e-formats, and I believe it will come out soon in voice.
Please buy this to help society better understand our cousins who are different, but nevertheless Special.
It can be purchased at Flying Island Press.
Being a parent of a girl with autism biases my reading interest toward books on the topic, and to date I have read a lot. Aspergirls is quite atypical of many i have read and refreshing in style.
Rudy Simone has Asperger's Syndrome (AS) and has been a strong advocate for those with the condition for some years. Her approach to writing is to say it as it is, and simply. She does this to good effect. What I particularly like about this tome is she quotes regularly from interviewed girls and women with AS and consequently adds many voices to hers in her coverage of a myriad of topics, from challenges in schools, to the impact of puberty on aspergirls. Nothing is taboo. There were also a few quotations that caused me to laugh out loud – it's good to be able to infuse some humor in what is a topic that can get quite serious.
Another aspect of the structure of the book is that at the end of each topic (chapter), Rudy summarises by providing direct advice to aspergirls, followed by advice to aspergirl parents. This is smart, very smart, as the two target audiences are vastly different and covers her audience well – and more importantly, sends clear messages to the two most important groups that affect aspergirls.
I found the book useful, but I have to concede that the book is overwhelmingly targeting Asperger's Syndrome, not other folk on the Autism Spectrum. My daughter is a high functioning autistic girl, and has many challenges that differ from AS. And yet the common ground was useful, evidenced by having discussions with my wife on various statements made.
All in all I found the book useful, clearly written, and sensibly structured.
My short story, Special (which is a science fiction, concerning autism) has been accepted in an anthology titled Flying Island Press Benefit: Autism Awareness. As you can tell by the title, this is a benefit anthology with proceeds going to an Autism fund raising benefit.
It’s not too late for new submissions to be accepted (noting it requires a strong autism plotline, or character, to qualify).
It will be released in June 2011.
I have a major interest in Temple Grandin, and books on Autism/Asperger’s, because I have a 5 year old daughter with Asperger’s. Nevertheless, Thinking in Pictures is a well written book without that bias.
This book is NOT about Temple’s life – you need to read Emergence to get the story, and it is well worth reading, but ten years later Temple’s writing style has improved amazingly. I keep thinking that the movie on Temple’s life would have had more influence from Emergence than Thinking in Pictures, but this book has all the publicity associated with it – go figure.
This book is in many ways technical – what it really is about is Grandin’s understanding of what autism is, and how autistic people deal with it, and how ‘normals’ should deal with it. It is well founded in latest findings in psychology, and has a fresh perspective in terms of Grandin’s immense experience in animal behavior. She does use examples drawn from her life, which does, in a way, provide a form of autobiography, but as stated above, it is not the point of this work of non-fiction.
I can honestly say that I have a more synthesized, cohesive understanding of my daughter’s condition reading this book, than all other books put together.
An excellent read, but if you are after an autobiography, you will be disappointed.
Well, I suppose I better get into the spirit. It is also a handy way of putting on record my goals (notably in writing).
So here it goes:
- Be a more tolerant dad. My daughter has Asperger’s Syndrome and, well, anyone who knows what I and my wife goes through, knows what I mean.
- Be a great dad and husband.
- Lose weight. I have never been heavier, and so my goal for the year is to lose 20kgs. That’s a tough one.
- Read more. As a writer I need to read – one of the cornerstones of being good at the craft (target: 24 books)
- Outline Bitter Creek by December 2011 (or perhaps do much more).
- Revise The Scepter and the Orb by September 2011 (first Evyntyde novel).
- Write 3 additional short stories and finalize/publish my Evyntyde anthology, Tales from the Chronicles of Evyntyde – by June 2011.
- Complete first draft of my second Evyntyde novel, Crystal Peak.
- Write at least 12 short stories in 2011.
- Qualify for membership of the SFWA.
- Addendum – write and complete YA Dystopian novela, The Comfort of Beanbags.
Point 10: Here is my Heat Map of getting into SFWA – the easiest path is to publish 3 short stories in recognized magazines etc. When I get three green slices of the circle, I qualify. Legend: Yellow means I am currently submitted to an SFWA mag, not counting green; red means there is a slot I haven’t submitted to, unless green. Green is a success, as stated.
Point: 3: lose 20 kg:
Point 4: Current book reading count: 10 out of 24 (not quite, but close to target)
Point 9: Write 12 short stories: 9 (way ahead of schedule)
OK, not big on plugging people, even generally. However, re my previous post, I have to say this guy is great. I saw his introductory dvd and I am won.
Let me explain. Throughout the 3 odd years that my wife and I have dealt with our daughter’s condition, it has always been, in many ways, uncertain, and certainly unscientific. Initially it was a case of "development delay" with the possibility of low spectrum autism. Then it was likely to be "autism", and finally, last year, it was diagnosed formally. "Asperger’s Syndrome" is a name used to keep clear of the baggage that goes with autism. The trouble was, for Jen and me, that the extent of her condition, and the prognosis, was never clear, and despite having a terrific group of people helping with early intervention — all helpful to one degree or another — we are still in the dark on the myriad of little things we need to fine tune our ability to help the little darling, and no-one to give us definitive answers.
Then we saw the dvd. This guy described to a tee the symptoms of what our daughter had, and talked about the way autistic people think. Gave us strategies. It was a major help for us.